Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
Our Granddaughter Demanded We Sell Our House to Help Her Boyfriend Start a Business – We Gave Her a Reality Check
When Mary and George become grandparents, they want nothing more than to spoil their granddaughter, Ellie. But as Ellie grows into herself, and is almost off to college—the couple have to teach her a lesson in understanding whom to trust with her heart, and their money.
The moment my daughter, Monica, was married, I realized that George and I had finally earned our time off. We were the parents of a married woman, who would eventually give us grandchildren.
A bride and groom | Source: Pexels
And until those grandchildren came into our lives—we were going to take advantage of the healthy years we had left.
A few years later, Monica and Eddie gave birth to our only granddaughter, Ellie.
A newborn baby girl | Source: Pexels
Time flew with George and I doting on her. She was our chance at redemption—for us to parent correctly.
“This little girl is everything,” George said when we came home from the hospital on the day Ellie was born.
“We’re going to give her all that we can, Mary, okay?” he said as we got into bed.
An unmade bed | Source: Pexels
I agreed. This was our opportunity to do everything correctly—and we had money now, so spoiling our granddaughter was something that we could do.
Fast forward to eighteen years later.
Now, Ellie is in high school, almost on her way to college. She grew up in front of us with all the attitude that Monica had as a child—and George and I relished every moment of it.
A teenager sitting on the floor | Source: Pexels
But then, Ellie’s attitude changed. Her feisty personality was no longer cute but rather something that threatened to change everything about her.
That Sunday morning began like any other, with the breeze taking over the kitchen as I did the weekly pancake and bacon breakfast. It was a routine that George and I had established so many years ago, that it was almost second nature now.
Pancakes with bacon and eggs | Source: Pexels
George made us cups of tea—the way he always did—when the doorbell rang, slicing through the calm morning.
I switched off the stove and went to answer.
Tea being poured | Source: Unsplash
There she was, our granddaughter, standing at the threshold, her eyes completely avoiding mine.
“Hi, darling,” I said, stepping aside to let her in. “You’re just in time for breakfast!”
Ellie frowned slightly and nodded to George when he came to see who was at the door.
A red door with a metal doorknob | Source: Unsplash
“Come on, the bacon is extra crispy,” George told her, reaching out to hug her.
But Ellie shook her head.
“Look, I’ll get straight to the point,” she said, her voice trembling slightly, betraying the cold front that she was putting up.
A smiling teenage girl | Source: Unsplash
Everything was odd about her behavior. Usually, she would barge in with hugs and kisses, and would ask us about our health. She would bring us cookies—always made with less sugar. She would make her love known.
But today, Ellie was a shadow of the child that had grown up in front of us.
A tin of cookies | Source: Unsplash
“You remember Tom?” she asked, casually.
Tom was her boyfriend. He was already in college and living off student loans. George and I had met him a few times and he had seemed decent enough. But there was always something about him that seemed off to me.
A smiling young man | Source: Unsplash
“I don’t know what she sees in him, Mon,” I told my daughter one afternoon when we went to a coffee shop to catch up.
“I don’t know either, Mom,” Monica said, digging into a slice of cake. “Eddie isn’t happy about her dating someone older, but you know Ellie. She made her case about it, saying that Tom was good for her. And that he was helping her understand the transition between high school and college.”
A table in a coffee shop | Source: Unsplash
Now, Ellie leaned against the wall and continued to speak.
“Tom’s got this startup idea, right? And it is all about renewable energy or something along those lines. He has been speaking to lots of people—advisors and so on. It could be big. Like huge. But there’s a catch. He needs cash to really get it going.”
People sitting around with plans | Source: Unsplash
I watched as my granddaughter took her phone out of her pocket. She continued to avoid eye contact with us.
George and I exchanged a glance. I had a feeling of what was going to come next.
A person holding a phone | Source: Unsplash
But still, Ellie’s words felt like a punch to the gut, delivered with a coldness that I couldn’t believe. It wasn’t something that I had ever associated with her.
“I need you guys to sell the house and move in with Mom and Dad. You’ll get a lot of money from this house, especially because of the neighborhood. It’s a good thing. And you’re old anyway, don’t you want to be back with Mom?”
A person holding house keys | Source: Pexels
“And then what?” I asked.
“And then you can give the money to Tom for his project!” she exclaimed, throwing her hands in the air.
George’s cup clattered against the saucer, his brow furrowed deeply in pain and disbelief at the disrespect coming from Ellie.
A disappointed old man | Source: Unsplash
“Ellie,” he said. “This is our home. Not some investment to cash out. It is filled with every memory of us, of our family. Why would you ask us to just give it up for a business venture that sounds like a scheme?”
I remained silent. I didn’t want to step in yet. I sat down on the couch, waiting for George to make Ellie see reason.
Ever since she was a little girl, he was the one person to get her to calm down and get back to herself.
An old woman sitting on a chair | Source: Pexels
“Because you’re my grandparents!” Ellie’s voice cracked, her usual composure slipping. “You should want to help me. Tom’s idea will work. You’ll see. We just need this startup capital.”
The room filled with a tense silence, the kind that suffocates.
I could see the desperation in her eyes, a wild, unsettling determination. It was clear that she was lost in her love for Tom, seeing only what she wanted to see.
A close-up of a teenage girl | Source: Unsplash
But I knew in my gut that Tom wasn’t the right person for her. Despite the age difference, there was just something wrong about them.
George and I exchanged a look of shared heartache. We both knew that confronting her directly wouldn’t help—it would only drive her away and try to find the money in a different way.
“We’ll see what we can do,” George told her.
A smiling old man | Source: Unsplash
After she left, we sat down, the weight of her visit pressing down on us. I began to wash the dishes, letting George come up with a plan.
“We need to show her, not tell her, about this man’s true character,” he said, his voice resolute.
George went into an elaborate scam about creating a fake lottery ticket.
“Don’t worry, Mary, Johnny is a wizard on his computer, he can create it for us.”
A person washing dishes | Source: Unsplash
Johnny was our neighbor’s son, and he was always creating posters for missing pets around the neighborhood.
George’s idea was a harmless trick meant to unveil Tom’s intentions without causing permanent scars. We spoke to Johnny, ordering a ticket designed for a jackpot winner and sent it to Tom anonymously—suggesting that it was a lucky draw from a local store.
Man using a laptop | Source: Pexels
The result was more immediate and devastating than we’d anticipated.
Two days later, as I was vacuuming the living room, Ellie returned, her face pale and streaked with tears.
“What happened?” I asked, enveloping her into my arms.
“Tom’s gone,” she said. “Grandpa told me what he did. And as soon as Tom thought that he had won, he packed his bags. He left to start his real life in the Caribbean—without me.”
A crying teenage girl | Source: Pexels
Her voice broke, and my heart with it.
I knew that Tom was going to end in heartbreak, but I didn’t think that it was going to happen so soon.
“I thought he loved me,” she whimpered. “How could I have been so blind?”
I stroked her hair, feeling her shudder with each sob.
A woman comforting a girl | Source: Pexels
“Oh, sweetheart, we didn’t want to hurt you like this,” I murmured, my own eyes damp with sorrow. “We just needed to see if he was the real deal before all of our lives changed to help him.”
As the weeks turned into months, Ellie’s wounds began to heal. She spent more time with us, bringing her art material and setting herself up in the living room.
Eventually, Tom was just another part of her growing up experience.
A person holding their art | Source: Pexels
What would you have done?
If you enjoyed this story, here’s another one for you |
When Eliza’s 10th wedding anniversary comes around, she hopes that Tom will take her away for a romantic getaway. But when he forgets about their anniversary and needs to work, she turns it into a girls’ weekend, only for her to see that Tom’s business trip is a rendezvous with his mistress.
Read the full story here.
This work is inspired by real events and people, but it has been fictionalized for creative purposes. Names, characters, and details have been changed to protect privacy and enhance the narrative. Any resemblance to actual persons, living or dead, or actual events is purely coincidental and not intended by the author.
The author and publisher make no claims to the accuracy of events or the portrayal of characters and are not liable for any misinterpretation. This story is provided “as is,” and any opinions expressed are those of the characters and do not reflect the views of the author or publisher.
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