Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
16 Photos Proving That Life in Sweden Is Nothing Like in the Rest of the World
10.4 million people live in Sweden — that’s just 2 million more than in New York City alone. But this country has just as many surprises as countries with larger populations. Maybe even more.
We at Bright Side love finding out how people in other countries live. And Sweden won over our hearts.
Swedish kebab-pizza
Diapers in Sweden have a father on the packaging.
Stockholm subway
Look at the internet speed in Sweden.
“Stayed in a Boeing 747 converted into a hostel at Arlanda Airport, in Sweden.”
“In Sweden, we get a text message when our blood has helped a patient. This is my 3rd time donating.”
Sweden has baby stroller parking spots
Swedish planes are named after famous people.
Miriam Bryant is a Swedish singer and songwriter.
The art of parking in Stockholm
In Stockholm, there are cutouts in the barrier allowing children and adults to observe the construction site/river.
A record store for mice in Lund
Chessboards on the tables in parks
These buses in Malmö, Sweden can go in both directions like a tram.
This Stockholm tree is one of the tallest Christmas trees in the world. It’s 35 meters tall.
“Saw this in a toilet in Sweden. What’s it for?”
It’s a special toilet to separate urine.
A cute traffic light in Stockholm
Have you ever been to Sweden? What impressed you the most?
Preview photo credit kc3w / Reddit
Leave a Reply