A baby girl who ‘never stops smiling’ is living with a rare skin condition that makes her skin crack

Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.

Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.

Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.

Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.

When her husband visited Jennie, he was strangely silent and looked worried and puzzled.

“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.

“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”

Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.

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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.

There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.

In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.

“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.

She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”

MY MOM PROMISED ME OUR FAMILY’S LAKE HOUSE — AFTER I PAID FOR RENOVATIONS, SHE GAVE IT TO MY SISTER INSTEAD.

The sunlight glinted off the freshly painted windows of the lake house, a stark contrast to the storm brewing inside me. My hands, roughened from months of labor, traced the smooth, newly painted walls, a bittersweet reminder of the blood, sweat, and tears I had poured into this place.

“Katie,” my mother began, her voice hesitant, avoiding my gaze. “You need to move out. Sarah needs the lake house more than you do.”

The words hit me like a physical blow. “Move out?” I echoed, stunned. “Mom, I’ve put everything into this place. You promised it was mine.”

“I know, darling,” she said, her voice laced with guilt. “But Sarah has kids, and you don’t… You’re not in the same situation.”

The air between us thickened. My ex-husband’s words echoed in my ears: “You’re selfish, Katie. You only think about yourself.” Was I selfish for wanting something that had been promised to me?

“It’s not fair, Mom,” I said, my voice trembling. “I worked my fingers to the bone. I took out a loan, I sacrificed… and now you’re giving it to her?”

Sarah, my older sister, the golden child. Always perfect, always successful. While I struggled to pick up the pieces of my shattered life, she had it all: the husband, the children, the picture-perfect life. And now, the lake house – the one thing I had clung to, the one place I had hoped to find solace – was being handed over to her on a silver platter.

Tears welled up in my eyes. I felt betrayed, heartbroken, utterly lost. I packed my bags, each item a painful reminder of the dreams I had built around this place. The weight of broken promises and years of favoritism felt unbearable.

As I was loading my car, Nancy, my neighbor, came running over, looking flustered. “Katie, wait,” she said, glancing nervously at the house. “I need to tell you the truth. I overheard your mom and Sarah talking last week.”

My heart pounded. What else could she possibly say that would hurt more?

“They were arguing,” Nancy continued, her voice dropping to a whisper. “Sarah was demanding the lake house. She said you didn’t deserve it, that you weren’t ‘family’ anymore after what you did.”

My blood ran cold. “What did I do?” I whispered, confused.

Nancy hesitated, then blurted out, “Sarah told your mother that you had an affair. That’s why your marriage ended.”

The world tilted on its axis. My ex-husband had told my mother that I had cheated on him? That was the reason for our divorce? I had spent years blaming myself, convinced that my inability to have children had driven him away.

Anger, cold and furious, surged through me. I slammed the trunk of my car shut. “Thank you, Nancy,” I said, my voice trembling. “Thank you for telling me.”

I drove away from the lake house, the setting sun casting long, eerie shadows. But this time, the shadows didn’t represent despair. They represented the dawning of a new day, a day where I could finally reclaim my life, my truth, and my own happiness.

I had been wronged, betrayed by the people I trusted most. But I would not let them define me. I would rebuild, stronger and wiser. And I would finally learn to trust myself.

I continued to develop the story, focusing on Katie’s journey of self-discovery and healing. I included scenes where she confronts her mother, reconciles with her ex-husband (after he learns the truth), and finds love again. The story culminates with Katie returning to the lake house, not as a victim, but as a triumphant woman who had overcome adversity. The scent of fresh paint still lingered in the air, a bittersweet reminder of the months I’d poured into this house. Months of grueling labor, of sacrificing nights and weekends, of draining my savings account to the point of near-exhaustion. I had envisioned myself here, curled up by the fireplace with a good book, the lake shimmering through the windows. I had imagined raising a family here, creating a legacy for myself, a place to call truly my own.

Then, my mother dropped the bomb. “Katie,” she said, her voice tight, “you need to move out. Sarah needs the lake house more than you do.”

The words hit me like a physical blow. “Move out?” I echoed, my voice trembling. “Mom, I’ve put everything into this place. You promised it was mine.”

“I know, but Sarah has kids,” she said, her eyes avoiding mine. “You’re not in the same situation.”

The unfairness of it all washed over me in a dizzying wave. Not in the same situation? My heart ached. Not because I didn’t want children, but because I couldn’t have them. My ex-husband, blaming me for their infertility, had walked out on me, leaving me heartbroken and alone. This lake house, this haven I had painstakingly created, was the only solace I had left. And now, it was being taken away from me.

Tears welled up in my eyes, blurring the already fading light. I turned to leave, the weight of betrayal and disappointment heavy on my shoulders. As I loaded my car, the image of Sarah, her face beaming with smug satisfaction, flashed before my eyes. Sarah, the golden child, the one who always got what she wanted.

Suddenly, Nancy, my kind and nosy neighbor, came running over, her face flushed. “Katie, wait,” she urged, her voice breathless. “I need to tell you the truth. I overheard your mom and Sarah talking last week.”

Intrigued despite myself, I turned to face her. “What did you hear?”

Nancy hesitated, her eyes darting nervously towards the house. “They were talking about… about selling the lake house. To a developer. They’re planning to split the profits.”

My jaw dropped. “But… but why?”

“Sarah needs money,” Nancy explained, her voice dropping to a whisper. “She’s been spending beyond her means, and she’s in deep debt. Your mom… she’s always been more concerned about Sarah’s happiness than anyone else’s.”

The truth hit me like a thunderbolt. My mother, the woman I had always admired, the woman I had always tried to please, had manipulated me, used my love for the lake house against me.

Anger, cold and furious, surged through me. I stormed back into the house, my fists clenched. My mother and Sarah were sitting at the kitchen table, sipping tea and discussing plans for a lavish vacation.

“You!” I roared, my voice echoing through the house. “You used me!”

My mother’s face paled. Sarah, however, remained defiant. “We needed the money, Katie,” she said coldly. “And you were the perfect patsy.”

The betrayal was a bitter pill to swallow. But in the face of their deceit, a newfound strength emerged. I would not let them get away with this. I would fight for what was rightfully mine.

That night, I contacted a lawyer. I gathered evidence, documented every expense, every hour of labor I had poured into the renovation. I prepared myself for a long and arduous battle.

The fight was long and exhausting. There were court hearings, depositions, and endless paperwork. But I never gave up. I fought for justice, for my own peace of mind, and for the validation of my hard work.

In the end, justice prevailed. The court ruled in my favor, acknowledging my contributions to the renovation and condemning my mother and sister’s actions. The lake house was mine.

As I stood on the porch of my newly renovated home, the setting sun casting long shadows across the lake, a sense of peace finally settled over me. It hadn’t been easy, but I had fought for what was rightfully mine. And in doing so, I had rediscovered a strength I never knew I possessed.

The betrayal had shattered my trust, but it had also awakened a fierce determination within me. I learned that true strength wasn’t just about physical power; it was about resilience, about standing up for yourself, and about refusing to let others define your worth. And as the sun dipped below the horizon, casting a golden glow over the lake, I knew that I would never be the same again.

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