Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Heartbreaking Revelation: Pat Boone’s Emotional Confession About Losing His Beloved Wife!
Pat Boone was a huge star in the 1950s and 60s, loved by fans everywhere.
In his long career, he did many things like writing songs, acting, writing books, and speaking to inspire people. He’s even written a book about faith called “If.”
Pat got married to Shirley Lee Foley when he was only 19. Shirley was the daughter of Red Foley, a famous country music singer.
One year after starting his music career, Pat Boone became famous with his hit song “Ain’t That a Shame,” which was originally by Fats Domino. In 1956, he had a song that reached number one on the charts, and only Elvis Presley was more popular at the time.
When he was just 23, he had his own TV show called The Pat Boone Chevy Showroom. It was on ABC and aired every week for 115 episodes until 1960.
“I was the youngest person ever to have my own music show on a big TV network, at 22 years old,” Boone said in an interview with Closer magazine.
Pat Boone’s career kept getting better and better. He became one of the most famous singers in America and also acted in movies like Journey to the Center of the Earth, State Fair, and The Greatest Story Ever Told, among others.
All the while, his wife Shirley was there, supporting him. She took care of their four daughters and also worked as an actress and assistant director.
They were married for 65 years until Shirley passed away at 84. She died because of complications from vasculitis, which is a group of disorders that damage blood vessels.
“Being married to one person for 65 years isn’t common in this wild industry,” Pat Boone shared with The Christian Post. “My wife Shirley passed away last year, and now I’m alone.”
Pat Boone still lives in the house they shared for many years and doesn’t plan to move. But he says he feels the sadness of losing his wife.
“I live here alone with a housekeeper and my dog, a little cocker spaniel named Shadow,” Pat Boone shared with Closer Weekly. “It’s just me and Shadow, feeling a bit lonely. But I’m okay. I miss Shirley.”
After his wife Shirley passed away, Pat told People magazine, “We had a wonderful life together for 65 years. She’s moved on to another place, but we’ll be together again one day.”
The love and devotion that these two shared is both beautiful and inspirational. Rest in peace Shirley.
Please share with all the Pat Boone fans you know.
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