Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
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The Laguna Garzon Bridge: A Circular Revolution in Bridge Design
Breaking Away from Tradition
In the engineering world, sleek, linear bridge designs are the norm. Yet, Rafael Vinoly, a distinguished Uruguayan architect, took a bold step in the end of 2015 with the Laguna Garzon Bridge. This circular bridge, spanning the Laguna Garzon in Uruguay, defied conventional design and drew global attention.
Innovative Purpose
The Laguna Garzon Bridge stands out not just for its design but for its unique function. Unlike traditional bridges that prioritize efficiency, Vinoly designed this structure to slow traffic. The goal was to let drivers enjoy the stunning natural scenery. As Vinoly explained, “The concept was to transform a traditional vehicular crossing into an experience that reduces speed and offers panoramic views while creating a pedestrian space in the center.”
A Game-Changer in Transportation
Before this bridge, crossing between Rocha and Maldonado involved loading cars onto rafts, a slow and inefficient method. The Laguna Garzon Bridge addressed these issues by accommodating up to 1,000 cars daily. With its 51.5-meter radius and two 46-meter straight sections at the entrances, the bridge has become a regional landmark.
A Symbol of Sustainability and Tourism
The Laguna Garzon Bridge represents Uruguay’s shift towards sustainable development and tourism. The circular design not only enhances the travel experience but also attracts visitors to the previously overlooked coastline of Rocha. By showcasing the country’s natural beauty through innovative architecture, the bridge promotes both environmental preservation and tourism.
A Unique Blend of Aesthetics and Function
While circular bridges are not new, they are rarely used for road traffic. The Laguna Garzon Bridge uniquely combines the aesthetics of a circular design with practical functionality. Vinoly noted, “Circular bridges aren’t common for road traffic, but the Laguna Garzon Bridge blends aesthetic appeal with functional design.”
A Legacy of Innovation
The Laguna Garzon Bridge is more than an architectural feat; it’s a testament to innovative thinking. By challenging conventional design, this circular structure sets a new benchmark in bridge architecture. Its success may inspire future architects and engineers to explore unconventional solutions, reminding us that remarkable achievements often come from daring to think differently.
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