In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
A Hidden Room, A Dark Secret: What We Uncovered Forced Us to Leave Our Home
We had no idea that our recently acquired dream home would completely upend our life until we discovered a hidden area. We had to move out as a result of what we discovered inside, but we had no idea that this nightmare would bring about an unforeseen turn of events.
I never imagined that I would wake up in a horror movie, yet that is exactly where I am. For years, Jack and I had been saving money to purchase our first house. I was ecstatic when we eventually received the keys. We immediately got to work on the improvements, with me leading the way while Jack concentrated on his task.
“Liv, you sure you’re okay managing all this?” The night before the renovations started, Jack inquired. Encircled by boxes, we reclined on our air mattress that we had borrowed.
I rolled my eyes. “I can handle this. Mr. Big Shot, you put your work first.”
Jack laughed and drew me in. “All right, all right. Just don’t enjoy yourself excessively without me.”
Everything was normal on Tuesday morning, until it changed. As I was enjoying my coffee and browsing through my phone, Carlos, the leader of our renovation team, contacted me.
He exclaimed, “Olivia, you gotta see this.”
Curious about what they’d discovered, I strolled over. Carlos gestured to a piece of the wall they had recently demolished. There was a door there, concealed by years of paint and drywall.
I said, “What do you think it is?”
Carlos gave a shrug. “I have no idea. Would you like to open it?”
I reached for the doorknob and nodded. I opened the creaking door and looked inside. My enthusiasm soon gave way to fear. Shuddering, I slammed the door shut.
“What’s wrong?” Carlos enquired, his expression filled with worry.
I was unable to talk. Reaching for my phone, I punched in Jack’s number. He detected the third ring.
“Hi Liv. What’s going on?”
“Jack, you must return home. Right now.”
“What? Why? Is everything in order?
Taking a deep breath, I tried to control my voice. Something was discovered inside the home. You must view it.
Jack didn’t dispute, so he must have heard the panic in my voice. “I’m on my way.”
I paced back and forth in front of the secret entrance while I waited for Jack. Although Carlos and his team continued to work, I could sense their wondering looks.
“You okay, Olivia?” Carlos paused his efforts to ask.
I nodded, not believing I could talk. My mind was buzzing with ideas. And what if it was a haunted house? What if we had discovered a sinister secret?
Jack was panting heavily when he got there. “Olivia, what’s going on?”
Taking his hand, I guided him towards the entrance. I remarked, “Look,” and carefully opened it.
Jack gasped in shock at what he saw. There were ancient garments in the concealed area that had originally been a closet. The worst part, though, wasn’t that. Insects crawled all over, and mold covered the garments. There was an overpowering smell, and spiders had taken up residence in the corners.
Jack mumbled, “Holy —,” and slammed the door. “How long has that been there?”
I gave a headshake. “I’m not sure. It was never brought up by the realtor.”
For a few while, we stood there in quiet, taking in what we had just witnessed. At last, Jack said something.
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