Most married couples get asked “when,” but Charli Worgan and her husband Cullen frequently received “why” questions.
The parents, who live in Sydney, are frequently in the spotlight due to their unique forms of dwarfism, most notably when Charli got pregnant with their first child.
After giving birth to their first child, the content Australian mother created a social media account to share updates on their family life with others. Little did she know how well-liked her account would become.
With two stunning daughters under their belt, Charli has amassed over 300,000 Instagram followers.
Charli recently revealed that she was fourteen weeks pregnant with her third child, but the announcement was bittersweet.
Charli has had to undergo thorough genetic testing during each pregnancy. Experts warn that if Charli and Cullen’s offspring inherit just one type of dwarfism, inherit both forms, or are of average height due to their genetic problems, the results might be fatal.
Charli expressed her disappointment at not being able to celebrate her pregnancy’s 12-week mark with her family, as most mothers do.
But at 12 weeks, I was preparing for a procedure called Chorionic Villus Sampling (CVS), which is similar to an amniocentesis, whereas most individuals are pleased to be able to announce their pregnancy. To check the embryo’s genetic composition, a big needle is placed into my abdomen to extract a sample of the placenta, which has a 2% miscarriage rate.
Their two daughters, Tilba, 4, and Tully, 2, each have one of the two varieties of dwarfism, so they waited to find out which of the four possible dwarfisms Charli’s third child would have.
In an Instagram post, Charli explained, saying, “Our child would be of ordinary height.”
Our child would have achondroplasia and be dwarfed similarly to me.
Our child would have geleophysic dysplasia, the same type of dwarfism that Cullen has.
As a result of inheriting both genetic defects, our child would be born with “double dominant dwarfism,” which is fatal according to every expert medical assessment. In the event that this had occurred, I could have decided to terminate the pregnancy or to go on and see how things turned out.
Enduring Hope and Resilience in the Midst of Adversity
Juanita Lira Eguiguren was an extraordinary woman who, despite enduring immense challenges, left a lasting legacy in the realm of health and well-being. Tragically, she passed away at just thirty years old after a courageous battle with breast cancer.
Diagnosed at the age of 22, Juanita confronted her illness with remarkable bravery and an inspiring spirit. She was a firm believer in the power of positive thinking, even in the face of overwhelming adversity. In a heartfelt message before her passing, she shared, “Hope is peace for me,” reflecting her unwavering belief that while we may not control our circumstances, we can choose how we respond to them. This mindset gave her comfort and strength throughout her fight.
Juanita came from a family deeply rooted in public service—her father was the mayor of Lo Barnechea, Chile. Her passing left the community in mourning, but those who loved her take solace in knowing she has found peace. Her courage, perseverance, and optimism live on in the hearts of those she inspired.
Her diagnosis came just as she was preparing to embark on a new adventure: studying abroad in Barcelona, Spain. Though her plans were derailed, Juanita faced this challenge with resilience. She underwent surgery and radiation therapy while maintaining a hopeful outlook on her recovery.
Despite the physical and emotional toll of her illness, Juanita achieved significant milestones. She completed her degree, fell in love, and eventually got married—all while battling cancer. These personal victories offered moments of hope, but in 2017, devastating news arrived: the cancer had returned and spread to her sternum, lymph nodes, and lungs. Even then, Juanita continued to face her circumstances with immense strength.
In addition to her personal achievements, Juanita left her mark on the professional world. She founded “The Healthy Route,” a health-conscious catering business that also provided wellness advice. Through this platform, Juanita reached a wide audience, gaining over 245,000 followers on Instagram, where she shared her journey and encouraged others to prioritize their health and well-being.
Juanita Lira Eguiguren’s life stands as a testament to resilience, hope, and the power of perseverance. Though her time was cut short, her impact on the world of health and wellness endures. Her story reminds us all that optimism and strength can carry us through even the greatest challenges, and that we each have the power to make a lasting difference in the lives of others.
Let us remember Juanita as a symbol of courage and inspiration, whose legacy continues to motivate others to face their struggles with hope and determination.
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