But every trip was a reminder of how connected we were and how much we valued this time together. It was a break from our everyday lives, a chance to let loose and just be, at least for some time.
“Mom, do you remember that time at the beach house when Kayla fell off the dock?” Evelyn would laugh, nudging her sister.
“Don’t remind me!” Kayla groaned, but she couldn’t help smiling. “I still can’t believe you all left me in the water like that.”
“We didn’t leave you, sweetheart. We were laughing too hard to pull you out,” I would tease, shaking my head.
These moments were precious, and I held onto them fiercely. But things started to change when Liam, my only son, got married to Beth.
Beth was sweet when they first met. Quiet, reserved, but kind-hearted. I was genuinely happy for them, and when they got married, I welcomed her into our family with open arms. Naturally, I invited her to join us on our girls’ trips. I wanted her to feel included, to be a part of our little tradition. It felt right at the time.
At first, Beth fit in well enough. She was always polite, maybe a little shy, but I thought she’d warm up eventually. She wasn’t as chatty as my girls, but she seemed to enjoy the trips. We all tried to make her feel comfortable.
“So, Beth,” Kayla asked one afternoon as we sat in a café on one of our trips. “What was it like growing up in Maine? I’ve always wanted to visit.”
Beth smiled softly, twirling the straw in her iced coffee. “It was nice. Quiet. Not much to do in my town, but the summers were beautiful.”
The conversation felt a bit forced, but we all chalked it up to Beth needing time to adjust. She’d become part of our family, and I wanted her to feel like she belonged.
But after Beth gave birth to her son, Lucas, things changed. She gained a lot of weight during pregnancy, which isn’t unusual. However, eight years later, she still hadn’t lost the baby weight.
I noticed how much it was affecting her, not just physically but in the way she moved and interacted with us. It was becoming harder to include her in our trips.
One day, we were out shopping. It was supposed to be a fun, lighthearted afternoon, just like old times. We’d hit the mall, grabbed lunch, and made our way through the stores, chatting and laughing. But Beth kept falling behind.
I glanced back and saw her sitting on a bench near the entrance of a department store. She looked exhausted, wiping the sweat from her brow. “You guys go ahead,” she said, breathing heavily. “I’ll catch up.”
Evelyn raised an eyebrow at me, trying to hide her frustration. “Mom, do we need to wait again?”
I sighed. “Let’s just give her a few minutes.”
But those few minutes turned into long stretches of waiting. We’d walk ahead, browse through the racks, and eventually circle back to find Beth still sitting there. It was becoming a pattern — and not just on that day. Every trip we went on, we had to slow down, stop more often, and accommodate her.
By the time we left the mall that day, the mood had shifted. What was supposed to be a carefree afternoon felt strained, and my girls were clearly frustrated.
“Mom, I hate to say it, but these trips aren’t the same anymore,” Kayla said as we loaded the shopping bags into the car.
“I know,” I replied, running a hand through my hair. “I just… I don’t want to leave her out.”
Evelyn nodded, her face softening. “We get it. But we can’t keep doing this. It’s not fair to us either.”
I couldn’t argue with that. I knew they were right. The truth was, Beth’s presence had begun to change the dynamic of our trips, and not for the better.
We were holding back, compromising our enjoyment to accommodate her. And it wasn’t just about walking slower or sitting more. It felt like the whole energy of our outings was different.
The tipping point came when we started planning our annual trip to the pumpkin patch and apple orchard. It’s a tradition we’ve had for years — my favorite time of the year.
The fall colors, the smell of apples in the air, the laughter as we wandered through the orchard picking fruit. It was something we all looked forward to.
As we sat around the kitchen table, Evelyn looked up from her phone. “So, are we inviting Beth this year?”
I hesitated. We all knew what that would mean. Long breaks, slow walks, and probably missing out on some of the things we enjoyed most about the trip.
“I don’t think it’s a good idea,” I finally said, my voice low. “It’s a lot of walking, and… well, you know.”
Kayla sighed with relief. “I’m glad you said it, Mom. It’s been hard with her.”
“We haven’t had a proper girls’ day in so long,” Lauren added, looking at her sisters. “I miss the way things used to be.”
The truth was staring me in the face, and there was no avoiding it.
That’s when I made the decision not to invite Beth. It wasn’t easy, but I told myself it was for the best. My daughters deserved a day to relax and enjoy themselves without constantly having to adjust to Beth’s limitations.
The day of the trip came, and it was perfect. The weather was crisp, the leaves were golden and red, and we spent the entire day walking through the orchard, picking apples, and laughing.
We didn’t have to stop or slow down. It was like the old days, just me and my girls. I even posted a few pictures on Facebook, not thinking much of it.
But later that night, my phone rang. It was Beth.
I took a deep breath before answering. “Hi, Beth.”
“Lilian, I saw the pictures on Facebook,” she said, her voice tense. “Why wasn’t I invited?”
I felt my stomach drop. I knew this conversation was coming, but I wasn’t prepared. “Oh, it was just a small trip,” I stammered. “Nothing big.”
“But I’m family,” Beth said, her voice rising. “Why didn’t you invite me?”
There it was. The question I had been dreading. I could’ve lied, made up some excuse, but what would be the point? The truth was staring me in the face, and there was no avoiding it.
“Beth,” I said softly, trying to choose my words carefully. “It’s not that we don’t want you there. It’s just… well, the walking. You’ve needed a lot of breaks, and it’s made it hard for us to enjoy the trips the way we used to.”
Silence hung in the air for what felt like an eternity.
“So, you didn’t invite me because of my weight?” she asked, her voice barely above a whisper.
I swallowed hard. “Yes,” I admitted, guilt washing over me. “It’s been difficult. We’ve had to change the way we do things, and… I didn’t want to say anything, but it’s affected our trips.”
Beth was quiet for a moment, and I could feel the hurt radiating through the phone. “I thought I was part of this family,” she finally said, her voice trembling. “I thought you cared about me.”
“I do care about you, Beth—”
“No, you don’t,” she interrupted. “If you did, you wouldn’t have excluded me like this. You wouldn’t make me feel like an outsider.”
And with that, she hung up. I sat there, staring at the phone, my heart heavy with regret.
Later that night, Liam texted me. “Mom, Beth’s really hurt. You need to apologize.”
I read the text over and over, feeling torn. Should I apologize? Was I wrong to protect this time with my daughters? I wasn’t sure anymore.
The next morning, I talked to the girls. “Do you think I was too harsh?” I asked as we sat around the kitchen table.
“No, Mom,” Evelyn said, shaking her head. “We love Beth, but it’s not fair to us either. Our trips haven’t been the same.”
Kayla nodded. “We just want to enjoy ourselves like we used to. You did the right thing.”
Their reassurance helped, but I couldn’t shake the guilt. I didn’t want to hurt Beth, but I couldn’t ignore the strain her presence had put on our trips.
I’d reached my limit. Maybe I could’ve handled it better, maybe I should’ve been kinder, but the truth was out now.
I still don’t know if I made the right decision. All I wanted was to protect the bond I had with my daughters. But now I wonder if that decision has cost me something far greater.
Do you think I handled it correctly? What would you have done in my place?
Mom of Boy with Rare Condition Shares Their Life, People React Differently
Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
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