Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
I Found an Envelope in My MIL’s First Aid Kit – She and My Husband Had an Agreement Behind My Back
My mother-in-law’s “helpful” visits after my baby’s birth seemed innocent until I discovered an envelope hidden in her bathroom. What’s worse, the emails inside and legal documents revealed a betrayal that I never saw coming.
I sat in my living room, staring at the mess of baby supplies while my five-month-old son Ethan napped in his swing. Ruth, my mother-in-law, stood in front of me with her perfect posture and concerned smile.
A woman in her 60s smiling while standing in a messy living room full of baby stuff | Source: Midjourney
“Why don’t you all stay at my house for a few days?” she suggested. “I have plenty of room, and you clearly need the support, dear.”
Before I could respond, Nolan jumped in. “That’s a great idea, Mom.” He turned to me, his expression pleading. “It will be good to have some help for a while. And Ethan will be in good hands.”
I wanted to say no. Ruth had been all up in our business since Ethan was born, always showing up unannounced or offering to take him to her house so I could “rest.” At first, I was thankful.
A tired-looking woman in her 30s holding a crying baby in a messy living room | Source: Midjourney
I was beyond exhausted from sleepless nights and juggling everything as a new mom. I didn’t even notice how overbearing she had become.
“You know, when I was raising Nolan, we did things differently. The right way,” she’d say while reorganizing my kitchen cabinets without asking. “Babies need structure, dear. They need experienced hands.”
As the weeks went by, Ruth grew more intense. She even converted her spare bedroom into a full nursery, complete with a crib, changing table, and rocking chair. She also bought duplicates of all of Ethan’s favorite toys.
A baby’s room | Source: Pexels
When I mentioned it seemed excessive, she just laughed. “Oh, Emma, you can never be too prepared! Besides, Ethan needs a proper space at Grandma’s house.”
Now here she was, suggesting we stay at her place. Nolan and her both stared at me expectantly, waiting for an answer.
I couldn’t fight them. I was just too tired. “Sure,” I mumbled. “A few days.”
So we crashed at my mother-in-law’s place for the night, and at exactly 7:30 a.m. the next morning, she was in the guest room doorway.
A woman smiling while standing at a doorway with her hands clasped | Source: Midjourney
“Oh, good morning! It’s the perfect time to get our sweet little pumpkin up. Have you fed him yet? Don’t worry, I’ll take care of it,” she chirped.
Trying not to groan, I rose from the bed and walked out of the guest room while she fussed around in the nursery. The surroundings only made me feel worse. Her house was far from welcoming to me.
I always felt like an intruder there. The living room was immaculate, like a museum where nothing was meant to be touched. Family photos covered the walls, mostly of Nolan at various ages, with Ruth front and center in each one.
A home’s hallway with photos hanging on the walls | Source: Midjourney
I should’ve been grateful that we had help from family. Ruth was experienced and organized like no one else in the world. But I just couldn’t shake how uncomfortable this whole situation made me.
Before I reveal what happened next, I will say that you have to trust your intuition, especially after you become a mother. But hindsight is 20-20, right?
Looking back, all the signs were there. Ruth’s constant presence and her subtle criticisms wrapped in sweet concern were red flags. I just hadn’t put all the signs together yet, or I didn’t see how anyone could try to do something so… malicious.
An angry woman with her arms crossed in a messy kitchen | Source: Midjourney
Anyway, Ruth fed and got Ethan back to sleep almost straight away. It was still early, so she managed to convince Nolan to go grocery shopping.
Meanwhile, I had developed a pounding headache, so once they were gone, I went into Ruth’s bathroom to look for some painkillers. I opened her medicine cabinet, saw no pills, and reached for the first aid kit just in case she stored them there.
But something other than the bottles caught my attention. There was a manila envelope shoved in there. Weird. Why would there be an envelope in a first aid kit? It felt extremely out of place. Curiosity got the best of me, so I grabbed it.
A manila envelope | Source: Midjourney
I’m glad I peeked inside, although I would always advocate for other people’s privacy. In this case, though, the universe was telling me to do it.
Because as soon as I realized what I was reading, my blood ran cold. The envelope contained notes and documents that Ruth had carefully prepared. After putting all the puzzle pieces together, the intent was clear: she wanted to take Ethan from me.
The words “Custody Proceedings” jumped out in a particularly wordy set of papers stapled together. I realized with horror that these had been issued by an actual law firm.
A set of legal papers that say “Custody Proceedings” | Source: Midjourney
Aside from that, the notes mentioned my every movement concerning chores and mothering duties:
“Emma sleeping while the baby cries – 10 minutes (photo attached)”
“House in disarray during surprise visit”
“Mother seems uninterested in proper feeding schedule”
All this time, while she was pretending to help, Ruth had been building a case against me. Photos I never knew she’d taken showed me at my worst moments: exhausted, crying, and overwhelmed.
A horrible image showed me breaking down on the back porch the one time I thought no one could see me.
A worried woman standing on the porch of a house | Source: Midjourney
But the real punch to the gut came from the email thread with a family lawyer.
“As discussed, my son Nolan agrees that his wife Emma is unfit to be Ethan’s primary caregiver,” Ruth had written. “She’s too tired to argue, which works in our favor. Soon, Ethan will be where he belongs: with me.”
My husband was involved in this too. I couldn’t even understand how or why. We were struggling, but we were doing fine for first-time parents.
A shocked woman holding papers while standing in a bathroom | Source: Midjourney
My first instinct was to rip everything to shreds or set it on fire right there in her pristine bathroom. Instead, I took out my phone with trembling hands and photographed every single page. I needed evidence.
I had just returned to the living room when Nolan and Ruth came back from their grocery run. My whole body shook with rage as I pulled out the envelope and slammed it on the dining table.
“What is this?” I demanded.
Nolan’s face went pale. “Where did you find this?”
A man looking shocked | Source: Midjourney
Ruth rushed in behind him. “Now, Emma, let me explain. This is all for Ethan’s well-being.”
“His well-being?” I laughed, but it came out more like a sob. “You mean your well-being. You’ve been planning this for months, haven’t you?”
“Emma, you have to understand,” Nolan stammered. “It was just a precaution, in case you didn’t get better.”
“Better?” I turned to him, my voice rising. “Better from what? Being a new mom? How could you? Were you really going to let your mother take our son?”
A woman yelling and gesturing with her hands | Source: Midjourney
Nolan’s next words destroyed whatever was left of our marriage.
“Come on, Emma,” he sighed. “I don’t think we thought it through when you got pregnant. We’re too young for this. You don’t even pay attention to me anymore. Having Mom raising Ethan just makes sense, and we can focus on ourselves.”
“You have GOT to be kidding me!” I couldn’t believe what I was hearing. “Are you that selfish? You don’t get enough attention, so you plot to take MY BABY from me?!”
“Emma, don’t yell,” Ruth scolded me. “You’ll wake the baby. You see? You’re too emotional to be a mother. Focus on being a good wife first, and then, we can talk about some visits.”
A woman holding her palm up | Source: Midjourney
I had no more words, though my feelings raged like never before. If I were a dragon, I would’ve burned down her house. But I took a deep breath, focusing on sounding cool and collected when I finally spoke.
“You won’t get away with this.”
With that, I ran to the nursery where Ethan was still sleeping, scooped him up, and headed for the door. Ruth tried to block my path.
Baby sleeping in a crib | Source: Pexels
“Emma, you’re being hysterical. You can’t take this child! We’ll call the police!” she threatened, reaching for Ethan.
I pulled away from her. “Don’t you dare touch him!” I grabbed the diaper bag and my purse. “Call the police and I’ll tell them how you tried to rob a mother of her child! We’ll see who they side with!”
At the door, I turned back and gave my soon-to-be ex-husband a scorching glance as I said, “Stay away from us.”
With that, I left that house and drove straight to my friend Angelina’s house as carefully but as quickly as I could. Luckily, Ethan slept peacefully in his car seat, unaware that his whole world had just shifted.
Baby strapped to a car seat | Source: Pexels
That night, after crying on Angelina’s shoulder and putting Ethan to bed in her spare room, I started making calls. I found a lawyer who specialized in family law and emailed her the photos I’d taken of Ruth’s documents.
The next few weeks were brutal. It was a bunch of legal meetings and court appearances that only made my anxiety skyrocket. Luckily, the police never got involved.
But Ruth and her lawyers tried to argue that she was just a concerned grandmother. She was probably not expecting my representative to use all the gathered notes and photos to prove that her intentions were nothing but manipulative.
An older woman sitting in court with a serious expression | Source: Midjourney
Also, when questioned, Nolan acted like a baby, confessing to doing everything his mother wanted. Once the judge heard that, he understood the truth.
So, Ruth didn’t just lose any chance at custody, but she also got slapped with a restraining order at my lawyer’s insistence. She can’t come within 500 feet of me or Ethan.
I filed for divorce from Nolan one week after custody was settled. The agreement gave him only supervised visitation rights. He didn’t even fight it. He probably knew he didn’t have a leg to stand on after everything that happened before.
Court papers for marriage dissolution | Source: Pexels
Now, Ethan and I are back in our house, making it our own again. To get rid of the painful memories, I painted the walls with new colors, rearranged all the furniture, and got my life together.
Sometimes I still get tired, but what mom doesn’t? Also, it’s much better now that I’m not dealing with a useless husband and a scheming mother-in-law.
And when my days seem endless, I remember Ethan’s sweet smile staring up at me, his momma, and that’s all I need to keep going.
A woman smiling while holding a laughing baby | Source: Midjourney
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