When Emiliana Rodriguez was a little girl, she recalls watching friends play a nighttime soccer match when one of the players abruptly died on the pitch.
Unaware of what had transpired, Rodriguez, a native of Bolivia, developed a phobia of the dark and the “monster”—the silent killer known as Chagas—that she had been told only appears at night.
Chagas disease is a unique sort of illness that is spread by nocturnal insects. It is also known as the “silent and silenced disease” that infects up to 8 million people annually, killing 12,000 people on average.
Emiliana Rodriguez, 42, discovered she had to live with Chagas, a “monster,” after relocating to Barcelona from Bolivia 27 years ago.
“Night is when the fear generally struck. I didn’t always sleep well,” she admitted. “I was worried that I wouldn’t wake up from my sleep.”
Rodriguez had specific tests when she was eight years old and expecting her first child, and the results indicated that she carried the Chagas gene. She recalled the passing of her buddy and remarked, “I was paralyzed with shock and remembered all those stories my relatives told me about people suddenly dying.” “I wondered, ‘What will happen to my baby?’”
Rodriguez was prescribed medicine, though, to prevent the parasite from vertically transmitting to her unborn child. After her daughter was born, she tested negative. Elvira Idalia Hernández Cuevas, 18, was unaware of the Mexican silent killer until her 18-year-old son was diagnosed with Chagas.
Idalia, an eighteen-year-old blood donor from her birthplace near Veracruz, Mexico, had a positive diagnosis for Chagas, a disease caused by triatomine bugs, often known as vampire or kissing bugs and bloodsucking parasites, when her sample was tested.
In an interview with the Guardian, Hernandez stated, “I started to research Chagas on the internet because I had never heard of it.” When I read that it was a silent murderer, I became really afraid. I had no idea where to go or what to do.
She is not alone in this; a lot of people are ignorant of the diseases that these unpleasant bugs can spread. The term Chagas originates from Carlos Ribeiro Justiniano Chagas, a Brazilian physician and researcher who made the discovery of the human case in 1909.
Over the past few decades, reports of the incidence of Chagas disease have been made in Europe, Japan, Australia, Latin America, and North America.
Kissing bugs are mostly found in rural or suburban low-income housing walls, where they are most active at night when humans are asleep. The insect bites an animal or person, then excretes on the skin of the victim. The victim may inadvertently scratch the area and sever the skin, or they may spread the excrement into their mouth or eyes. This is how the T. cruzi infection is disseminated.
The World Health Organization (WHO) estimates that between 6 and 7 million people worldwide—roughly 8 million people in Mexico, Central America, and South America—have Chagas disease; the majority of these individuals remain oblivious to their illness. These estimates are provided by the Centers for Disease Control and Prevention (CDC). The persistent infection might be fatal if untreated. According to the Guardian, Chagas disease kills over 12,000 people year, “more people in Latin America than any other parasite disease, including malaria.”
Despite the fact that these bugs have been found in the United States—nearly 300,000 people are infected—they are not thought to be endemic.
While some people never experience any symptoms, the CDC notes that 20 to 30 percent experience gastrointestinal or heart problems that can cause excruciating pain decades later.
Furthermore, only 10% of cases are detected globally, which makes prevention and treatment exceedingly challenging.
Hernández and her daughter Idalia went to see a number of doctors in search of assistance, but all were also uninformed about Chagas disease and its management. “I was taken aback, terrified, and depressed because I believed my kid was going to pass away. Above all, Hernandez stated, “I was more anxious because I was unable to locate any trustworthy information.”
Idalia finally got the care she required after receiving assistance from a family member who was employed in the medical field.
“The Mexican government claims that the Chagas disease is under control and that not many people are affected, but that is untrue,” Hernández asserts. Medical practitioners misdiagnose Chagas disease for other heart conditions because they lack knowledge in this area. Most people are unaware that there is Chagas in Mexico.
The World Health Organization (WHO) has classified chagas as a neglected tropical disease, which means that the global health policy agenda does not include it.
Chagas is overlooked in part because, according to Colin Forsyth, a research manager at the Drugs for Neglected Diseases Initiative (DNDi), “it’s a silent disease that stays hidden for so long in your body… because of the asymptomatic nature of the initial part of the infection.”
Forsyth went on to say, “The people affected just don’t have the power to influence healthcare policy,” making reference to the impoverished communities. It’s kept hidden by a convergence of social and biological factors.
Chagas, however, is becoming more well recognized as it spreads to other continents and can also be transferred from mother to child during pregnancy or childbirth, as well as through organ and blood transfusions.
The main objective of the Chagas Hub, a UK-based facility founded by Professor David Moore, a doctor at the Hospital for Tropical Diseases in London, is to get “more people tested and treated, and to manage the risk of transmission, which in the UK is from mother to child,” according to Professor Moore.
Regarding the WHO’s 2030 aim for the eradication of the disease, Moore stated that progress toward it is “glacial” and added, “I can’t imagine that we’ll be remotely close by 2030.” That seems improbable.
Two medications that have been available for more than 50 years to treat chagas are benznidazole and nifurtimox, which according to Moore are “toxic, unpleasant, not particularly effective.”
Although the medications are effective in curing babies, there is no guarantee that they will prevent or halt the advancement of the condition in adults.
Regarding severe adverse effects, Rodriguez remembers getting dizziness and nausea as well as breaking out in hives. She completed her therapy, and she gets checked out annually.
Moore goes on to say that while creating stronger anti-Chaga drugs is crucial to stopping the disease’s spread, pharmaceutical companies are currently not financially motivated to do so.
As president of the International Federation of Associations of People Affected by Chagas condition (FINDECHAGAS), Hernández is on a mission to raise awareness of the condition until there is a greater need on the market for innovative treatments.
In Spain, Rodriguez is battling the “monster” as part of a campaign to increase public awareness of Chagas disease being conducted by the Barcelona Institute for Global Health.
“I’m tired of hearing nothing at all,” Rodriguez declares. “I want Chagas to be discussed and made public. I’m in favor of testing and therapy for individuals.
They are being heard, too.
World Chagas Disease Day was instituted by the WHO on April 14, 1909, the day Carlos discovered the disease’s first human case.The WHO states that “a diversified set of 20 diseases and disease categories are set out to be prevented, controlled, eliminated, and eradicated through global targets for 2030 and milestones.” And among them is Chagas.
To prevent a possible infestation, the CDC suggests taking the following steps:
Close up any gaps and fissures around doors, windows, walls, and roofs.
Clear out the rock, wood, and brush piles close to your home.
Put screens on windows and doors, and fix any tears or holes in them.
Close up gaps and crevices that lead to the exterior, crawl areas beneath the home, and the attic.
Keep pets inside, especially during the evening.
Maintain the cleanliness of your home and any outdoor pet resting places, and check for bugs on a regular basis.
If you believe you have discovered a kissing insect, the CDC recommends avoiding crushing it. Alternatively, carefully put the bug in a jar, fill it with rubbing alcohol, and then freeze it. It is then recommended that you bring the bug’s container to an academic lab or your local health authority so that it can be identified.
Please tell this tale to help spread the word about an illness that goes unnoticed!
Boy Goes to Visit Twin Brother’s Grave, Doesn’t Return Home Even at 11 p.m. — Story of the Day
It was a parent’s worst nightmare come true when the Wesenbergs lost their little son Ted one Sunday afternoon. Unfortunately, it happened in a place that was supposed to be the safest for the family, where nothing should have gone wrong, yet everything did.
The Wesenbergs found Ted dead in their swimming pool. His body was floating like a pool float, and Paul Wesenberg had dived into the water to save his son, but it was too late—neither his mouth-to-mouth nor the paramedics he’d dialed could bring his son back.
For illustration purposes only. | Source: Pexels
Linda Wesenberg couldn’t bear the sorrow of losing her son, and she sat as pale, numb, and motionless as her late son at his funeral. Then as a week went by without Ted in the Wesenberg household, things turned chaotic, brutal even, and so harsh that little Clark couldn’t stand it…
Linda and Paul were struggling to cope with their loss, and they fought every day, every time. Clark heard loud noises from his parents’ room every night, and his mommy would get frustrated and eventually cry.
His daddy would blame his mommy for Ted’s death, and his mommy would blame everything on his daddy. Clark hid under his blanket every night, clutching his teddy bear and sobbing whenever he heard his parents bickering.
No loss is so profound that love cannot heal it.
When Ted was there with him, things had been so different. Their parents rarely argued back then, and his mommy was never sad and upset. She would kiss him goodnight and hug him before she tucked him in bed, but she no longer did any of that now.
She had also stopped making breakfast and often stayed in bed, telling him she was ill. Paul always made them toast and eggs for breakfast now, and he had started arriving home early to prepare dinner for them, but his cooking was not even close to Linda’s.
For illustration purposes only. | Source: Pexels
Clark missed his brother. He missed Ted so badly that he wished he had gone to the place where his brother was… because their parents no longer cared about their son, who was still alive.
All they cared about was who was to blame for their other son’s death.
One evening, things went from bad to worse. Clark heard his parents arguing again, and he was so frustrated that he couldn’t stand it. “Mommy! Daddy! Please stop!” he yelled as he stormed into their bedroom. “Please stop! I don’t like it when you fight!”
“Look, Paul!” his mother hissed. “I lost Ted because of you, and now Clark hates you!”
“Oh really, Linda?” Paul shot back. “And what about you? I don’t think Clark’s in awe of you!”
Clark’s parents forgot he was in their room and continued to argue. They began blaming each other for Ted’s death again, and Clark decided he didn’t want to stay there any longer. Their home was filled with screams and tears since Ted left, and Clark had started despising his home.
“I hate you both…” he whispered, tears running down his cheeks. “I HATE YOU, MOMMY AND DADDY! I don’t want to live with you! I’m going to meet Ted because only he loved me!”
For illustration purposes only. | Source: Pexels
Ted ran away from his parents’ room and out the front door. He paused to collect the dahlias he and Ted grew in their garden before running away to Ted’s grave in the cemetery only blocks away from their home.
“Look, you made him cry again. I’m sure you’re relieved now!” Paul snarled.
“I made him cry? Stop acting like I’m the bad person here!”
Linda and Paul continued to bicker, unconcerned about their little son, who’d run away to the cemetery alone. Clark sobbed as he pressed his fingertips against his brother’s gravestone and ran his fingers over the inscription.
“In the beloved memory of Ted Wesenberg,” read the engraving.
Clark bawled his eyes out at the sight of his brother’s grave. He missed Ted so much!
For illustration purposes only. | Source: Unsplash
“I… I m—miss you, Ted,” he wept. “Could you please ask the angels to return you?”
“…and mommy and daddy are constantly arguing. Ted, they no longer love me. They hate me, and they don’t care about me. Could you please come back, Ted? Please? Nobody plays football with me, not even daddy…”
Clark had never felt so alone in his life. He placed the dahlias against his brother’s grave and sat down on the prickly grass, telling him about his heart’s concerns and how ignored and forgotten he felt.
Clark couldn’t stop crying as he told Ted how much he missed him, how difficult life was without him, and how much their parents had changed. He complained to him about the burnt breakfasts, how he had stopped growing dahlias, and how lonely he was.
Clark’s heart was so at ease after finally sharing his worries with his brother that he didn’t notice when the hours passed, and the sky darkened. The cemetery became deserted, and there wasn’t a single soul in sight. Yet, Clark decided not to go home because it was the first time since Ted’s death that he felt at peace.
For illustration purposes only. | Source: Pexels
Suddenly, he heard the rustling of dried leaves behind him. Clark looked around in fright. Who could’ve come to the gravesite at this hour? He sprang to his feet in terror as the sound grew louder and louder, still searching about.
Terrified he wasn’t alone, Clark whirled back to run, but he was too late. He saw several men clad in black robes approaching him. Their faces were obscured with hoods, and they held firebrands.
“See who has arrived in our dark kingdom! You shouldn’t have risked coming here, boy!” shouted one of the men.
“Who… who are you?” Clark asked in tears. “Please let me go!”
Clark was shaking in fear and didn’t know how to get himself out of trouble. The men didn’t let him leave.
For illustration purposes only. | Source: Unsplash
Clark was terrified of the dudes in robes, but then he heard a man’s booming voice. “Chad, back off! How many times will I tell you not to gather in my graveyard with your idiotic pals dressed in cult garb?”
Clark noticed the tall, well-dressed man in his 50s, as he approached. “Don’t worry, boy,” he said to Clark. “These boys won’t do anything. They’re worse than kids!”
“Oh, c’mon, Mr. Bowen!” The dude who stood face-to-face with Clark pulled off his hood and sighed. “Where else are our cult’s activities intended to take place if not here in a cemetery?”
“How about you stop burning your lousy report cards here and start studying instead? Back off, or I’ll tell your mother you often smoke here! I’m sure you wouldn’t take that chance. Now, you,” he gestured to Clark. “Come here, kid. Let’s get you home.”
Mr. Bowen seemed like a nice man to Clark. He dashed up to him and grasped his outstretched arm. Mr. Bowen took the boy to a small cabin and served him hot chocolate.
“What were you doing here at this hour?” the older man asked Clark.
For illustration purposes only. | Source: Unsplash
Mr. Bowen appeared to be a kind man, so Clark opened up to him about his parents and brother, how their lives had turned into a living hell since Ted died, and how he didn’t like his parents and didn’t want to go home.
***
Back home, Linda was panicking. She dialed Paul several times, but he wasn’t answering. It’d been over two hours since Paul left home after their quarrel.
She had been sitting at the kitchen table, venting to her friend on the phone all this while. As soon as she hung up and looked around, it hit her: Clark wasn’t around. Where’s Clark?
Linda’s heart was racing as she looked at the clock. It was past 11 p.m. when she checked Clark’s room and found him missing. Linda then went into the other rooms, the bathrooms, and the backyard, but Clark was nowhere to be found. To her, it was as if he’d vanished into thin air.
She called Paul again, no answer. “Pick your darn phone, Paul!” she cried. “Oh gosh! What do I do now?”
For illustration purposes only. | Source: Pexels
Linda paced nervously in her living room. She had no idea where to look for Clark until… she remembered him coming into the bedroom when she and Paul were arguing.
“The cemetery!” she recalled. “He was going to meet Ted!”
Linda grabbed the house keys, locked the door, and hurried to the cemetery. As she turned to the first street, she saw Paul’s car. He pulled over and rolled down his window.
“What are you doing here?” he asked.
“Clark isn’t home yet!” she said, getting inside the car. “Drive to the cemetery now!”
“What the hell?” Paul cried, starting the engine. “But when… did he never come back?”
“No, Paul! We were, well…” she paused. “We were so busy arguing that we didn’t notice!”
For illustration purposes only. | Source: Pexels
Paul and Linda hurried to Ted’s grave as soon as they got to the cemetery. But there was no sign of Clark.
“Clark!” Linda shouted. “Honey, where are you?”
Right then, Paul nudged Linda. “Linda!” he cried. “What the hell is going on there!? Look!”
Paul and Linda were taken aback when they noticed a fire in the distance and heard voices performing chants. As they approached the gathering, they saw several teens dressed in black robes performing some sort of ceremony.
“Oh Lord,” Linda cried out. “Could they… have done something to Clark? Oh no, we’ve just lost Ted, and now—”
“Linda, no,” Paul consoled her. “Let’s not jump to any conclusions. Wait right here. Excuse me, boys,” he began hesitantly, approaching them. “Is it possible you saw this boy here…”
One of the boys smirked as Paul showed them a photo of Clark. “Your son arrived at the wrong place at the wrong time!” he shouted. “Your son should not have come!”
For illustration purposes only. | Source: Unsplash
Paul looked intently at the teen, then at his friends. In those robes, they all appeared nothing but dumb, and they’d been burning what appeared to be their grade cards.
“Oh really?” he asked, putting his phone in his back pocket. “Well…” Paul grabbed the boy’s collar and yanked him forward.
“Listen, kid; You’d better speak out, or you’re going home with a broken nose!”
“Woah, woah, okay! Relax!” the boy Paul had warned said. “I’m…I’m Chad! And I saw your son. We did nothing to him! Mr. Bowen, the graveyard guard, grabbed him.”
“What?”
“He… he took your son, sir. I swear. He lives right outside the cemetery! We just come here every night to scare people, that’s all!”
For illustration purposes only. | Source: Unsplash
***
When Paul and Linda arrived at Mr. Bowen’s cottage, they noticed Clark and Mr. Bowen seated on a sofa through the window. The parents wanted to burst inside and hug their son but stopped in their tracks when they overheard him talking.
Paul and Linda were embarrassed. They listened in tears and shock as Clark spoke about his heart’s worries, and Mr. Bowen advised him to reconcile with his parents. “They still adore you, little boy,” the older man said. “Look, kid. I lost my wife and child. Their plane crashed, and I’ve lived in this nightmare for years, missing them every single day and night. What’s happened in your family is any parent’s worst nightmare come true. How about we be kinder to them?”
Clark agreed, nodding at some point.
For illustration purposes only. | Source: Unsplash
Instead of grieving the loss of what you don’t have, take the opportunity to appreciate what you do have.
Paul and Linda could no longer wait.
“I’m so sorry, honey!” Linda cried as she and Paul stormed into the cottage. She held her boy close as her tears flowed freely.
For illustration purposes only. | Source: Unsplash
Paul looked at Mr. Bowen apologetically and thanked him for saving Clark. “Thank you,” he said. “Thank you so much for what you did for our family just now.”
“No problem. I know the hell you’re going through. So, I understand. Hang in there.”
Eventually, Mr. Bowen became the Wesenbergs’ close friend. In months, idyll returned to this family’s household. They could heal from Ted’s loss and finally look at life positively.
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