Woman with rare skin condition overcomes negativity and finds true love

Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.

For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.

Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.

The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.

Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.

Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.

“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.

Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.

Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.

But despite her suffering, she remains upbeat and happy and has even found love.

She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.

He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.

”He came and he showed me that I could live a true love story”, she says.

But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.

”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.

Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.

”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.

A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:

”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.

“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”

His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.

Karine wants others to realize the importance of being positive.

”Be happy, smile, because life happens only once,” she said.

In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.

Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.

Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.

Angelina Jolie through the years: The star’s life in photos

Angelina Jolie and Jon Voight

Angelina Jolie has lived her whole life in front of the spotlight. She was born to father, Jon Voight, and mother, Marcheline Bertrand in 1975. Now, on her 46th birthday, see her evolution through the years in the limelight.

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Jaime Haven Voight, Angelina Jolie, and Jon Voight

Jolie clings tight to father, Jon Voight, in 1980.

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Angelina Jolie, James Haven and Jon Voight

Angelina Jolie, Jamie Haven and Jon Voight attend the Academy Awards in 1986.

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Angelina Jolie, Jon Voight, and James Haven

Angelina Jolie, Jon Voight, and Jamie Haven at the 60th Academy Awards.

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Angelina Jolie

Jolie starts life in front of the camera while modeling a bikini in 1991.

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Angelina Jolie

Jolie attends the premiere of “Wallace” in 1997.

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Angelina Jolie

Jolie at the premiere of “Gia” in 1998.

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Angelina Jolie

Jolie goes blonde for the SAG Awards in 1999.

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Angelina Jolie and Billy Bob Thornton

Angelina Jolie and Billy Bob Thornton get close at the “Gone in 60 Seconds” premiere. The two were married from 2000 to 2003.

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Angelina Jolie

Jolie smolders in a beige dress at the “Taking Lives” premiere in 2004.

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Angelina Jolie

Jolie out with baby Maddox in 2003.

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Angelina Jolie

Jolie arrives to the Venice Film Festival in 2004.

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Brad Pitt and Angelina Jolie

Jolie beams next to Brad Pitt at the premiere of “Mr. and Mrs. Smith” in 20o5. The two began their relationship while filming the movie while Pitt was still married to Jennifer Aniston.

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Angelina Jolie

Jolie films “Life or Something Like It” with a platinum blond wig.

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Angelina Jolie and Brad Pitt

Pitt and Jolie attend the premiere of “God Grew Tired Of Us” in 2007.

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Angelina Jolie steps out with Maddox and Shiloh

Jolie steps out with Maddox and Shiloh in 2007.

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Brad Pitt and Angelina Jolie

Angelina Jolie steps onto the red carpet while pregnant in 2008.

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Brad Pitt and Angelina Jolie

Pitt and Jolie attend the SAG Awards in 2009.

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Angelina Jolie and her children

Jolie out with her children in 2011.

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Brad Pitt and Angelina Jolie

Jolie showing off some leg at the Academy Awards in 2012.

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Brad Pitt and Angelina Jolie

Pitt and Jolie attend the “Maleficent” premiere in 2014. The two filed for divorce in 2016.

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Pax Jolie-Pitt and Angelina Jolie

Pax Jolie-Pitt and Angelina Jolie attend the Netflix Golden Globes in 2018.

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Angelina Jolie attends the "Maleficent" premiere with her kids, Vivienne, Zahara, Shiloh and Knox in 2019.

Angelina Jolie attends the “Maleficent” premiere with her kids, Vivienne, Zahara, Shiloh and Knox in 2019.

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Angelina Jolie and Vivienne

Jolie beams with her daughter, Vivenne, in 2020. While Jolie hasn’t acted in a movie since 2019’s Maleficent, she has stayed in the spotlight as her custody battle with ex, Brad Pitt, rages on.

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